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Achievements so far...
Ryan Stanford's experiences as a sufferer of Alpers' Disease prove that despite the disease's rarity, it has an immense impact on the lives of those it affects. With so little public awareness of Alpers' Syndrome, and a corresponding lack of research funding, Ryan's plight has not received the attention that other conditions attract.
But although any treatments won't arrive in time to help Ryan, his parents want to use the Ryan Stanford Appeal to raise awareness of the disease and fund research into this terrible condition. Future sufferers of Alpers' Syndrome might benefit greatly from treatments and remedies which haven't been discovered yet - with the help of kind donations and sponsorships, Ryan's legacy can be one of hope for children who, in years to come, will find themselves in his position.
If you can do anything at all to help Ryan and his family in the tough times ahead, or help to raise wider awareness of Alpers' Disease so that a cure might be found, please get in touch.
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FUNDRAISING IDEAS
Here is just a small list of fundraising ideas which you might wish to take part in to help raise funds for our appeal.
1. SPONSORED RUNS
We already have three people taking part in this years Great North Run over in Newcastle and a number of people taking part in the Blackpool 10K run this year.
We are in the process of looking into applying for a block number of places at various running events around the UK and will post them on here as we find more out.
If you are interested in taking part in a sponsored running event, please contact us and we will do all that we can to help you achieve this!
2. SPONSORED SWIMS
We are in the process of looking into the Great North Swim at Windermere.
If you are interested in taking part in a sponsored swimming event, whether it be indoor or outdoor, please contact us.
3. GOLFING EVENTS
If any golf clubs would be willing to let us organise a sponsored golfing event at your venue, please let me know!
4. SPONSORED PARACHUTE JUMP
Would you consider doing a solo static line parachute jump or a tandem skydive? We have a local parachute centre based in Cockerham, near Lancaster where you could do it!
You could do your sponsored parachute jump for FREE if you are able to raise at least :
£390 for static line solo parachute jump
£450 for tandem skydive
If you would prefer to take part in a sponsored parachute jump closer to you, please get in touch with us and we will see what we can arrange for you!
5. MOUNTAIN CHALLENGES
If anybody would like to take part in a mountain challenge (ie. Three Peaks - Ben Nevis, Scafell and Snowden in 24 hours, Yorkshire Three Peaks, Coast to Coast.....) or even a more challenging 15 peaks of Snowden for active mountain walkers already, please contact us on enquiries@ryanstanfordappeal.org.uk
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Should you wish to do any form of fundraising for the appeal, please don't hesitate to contact us.
We can provide you with sponsorship forms etc. You can now set up your own fundraising page on JustGiving - the online donation website - www.justgiving.com/ryanstanford. Your friends and family will be able to sponsor you from your own page.
Please also keep up to date with our latest information on our Facebook page by typing "Ryan Stanford Appeal" into the search box.
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FUTURE FUNDRAISING EVENTS
SATURDAY 14TH JANUARY 2012 - FOUR DIVORCES AND A WEDDING, LANCASTER GRAND THEATRE
10% of Gross Box Office will be donated to the Ryan Stanford Appeal
Saturday Matinee 2:30pm and 7:30pm
Special rate : £10
Free Drink and Cake
Bookings can made online at www.lancastergrand.co.uk or by ringing 01524 64695
For further information, please visit www.fourdivorcesandaweddin
Guest Appearance : John Gillmore - BBC Lancashire
Amy-Jo Clough (lead vocal in the Ryan Stanford Appeal Charity CD) is involved in this performance!
SATURDAY 19TH MAY 2012 - BUPA JUNIOR & MINI GREAT MANCHESTER RUN, MANCHESTER (3-15 YEAR OLDS)
A fantastic way to raise funds and awareness for the Ryan Stanford Appeal. For further info, please visit www.greatrun.org Please let me know if you book a place in this event for the appeal xx
The Junior and Mini Great Manchester Run returns to Eastlands on Saturday 19 ...May 2012, featuring as part of a great weekend of sport in Manchester.
The Mini event covers 2km and is suitable for children aged 3-8 years - all runners may be accompanied by an adult. The Junior event is 2 miles and suitable for those aged 9-15 years, with adult accompaniment optional.
Prizes are offered for the first three boys and girls in each Mini run wave and for the Junior run in the following categories:
Boys – 9-10 years, 11-12 years, 13-15 years
Girls – 9-10 years, 11-12 years, 13-15 years
All runners will receive a t-shirt, medal and finisher's pack.
Once again there will be a host of 'Come and Try It' activities on offer, giving children the chance to try new sports including football, streetdance and mini golf.
This is the North West's biggest and most popular junior running event. Don’t miss out!
SUNDAY 20TH MAY 2012 - BUPA GREAT MANCHESTER RUN, MANCHESTER
We already have one runner who has booked their place for this event - Dannielle Leak - she can be sponsored via http://www.justgiving.com/
For anybody who is interested in raising funds and awareness for the Ryan Stanford Appeal, please consider entering ......the Bupa Great Manchester Run 2012 in Manchester. 10Km running event for runners of all abilities - Sunday 20th May 2012. For further info, please visit www.greatrun.org
Please let me know if you have entered to take part in aid of the appeal XX
SATURDAY 15TH SEPTEMBER 2012 - BUPA JUNIOR & MINI GREAT NORTH RUN 2012, NEWCASTLE (3-16 YEAR OLDS)
A fantastic opportunity to raise funds and awareness for the Ryan Stanford Appeal - please let me know if you have entered the run in aid of the appeal. For further info, please visit www.greatrun.org
The Junior and Mini Great North Run returns on Saturday 15 September ...2012 and in Olympic year it’s set to be better than ever, featuring as part of an action packed day on the stunning NewcastleGateshead Quayside.
Both routes will include a section of a purpose built athletics track which will see some of the world’s best athletes competing in the Great North CityGames on the same day, so who knows, you might be running over the same track as an Olympic medallist!
The Mini event covers 1.5km and is suitable for children aged 3-8 years - all runners may be accompanied by an adult. The Junior event is 4km and suitable for those aged 9-16 years, with adult accompaniment optional.
Prizes are offered for the first three boys and girls in each Mini run wave and for the Junior run in the following categories:
Boys – 9-10 years, 11-12 years, 13-14 years, 15-16 years
Girls – 9-10 years, 11-12 years, 13-14 years, 15-16 years
All runners will receive a t-shirt, medal and finisher's pack.
Junior and Mini runners will get entry into The Great North Run Pasta Party with free pasta for every runner, and there will be lots of 'Come and Try It' activities on offer, giving children the chance to try out new sports.
With both events selling out in 2011, this is the biggest and most popular children’s running event in the country. Don’t miss out!
SUNDAY 16TH SEPTEMBER 2012 - BUPA GREAT NORTH RUN 2012 - NEWCASTLE
For anybody who is interested in raising funds and awareness for the Ryan Stanford Appeal, please consider entering the ballot for the Bupa Great North Run 2012 in Newcastle. 13 mile course run by 54,000 runners - Sunday 16th September 2012. For further info, please visit... www.greatrun.org
First 3,000 places in the Daily Mirror ballot are now open on www.greatrun.org then main individuals ballot opens on Saturday 7th January. We also have 5 guaranteed charity places this year which is fantastic! Please let me know if you are entering the ballot and if you are successful xx
PAST FUNDRAISING EVENTS
SATURDAY 17TH APRIL 2010 - CHARITY BAG PACK, SAINSBURYS, LANCASTER
We managed to raise an amazing £595.54 for the appeal!!
Thank you to everybody who came to help - Helen, Michelle, Meg, Mark, Cheryl, Rebecca, Rach, Jack, Mandy, Georgia, Rachel, Amy and last but not least Ryan!!
Huge thanks to Sainsburys, Lancaster for allowing us to do the bag pack and all the many customers who have supported us today. Your money will go a long way to funding research into Alper's Syndrome.
SUNDAY 2ND MAY 2010 - THE BABY MAZE BABY & TODDLER SHOW 2010 AT THE PLATFORM, MORECAMBE
We raised £52.43 at the Baby Maze Baby & Toddler Show at the Platform, Morecambe.
Unfortunately, Ryan was extremely grumpy and cried the whole time so I apologise to everybody who heard him!
Huge thanks to Helen, Amy, William and Elliot for being on the stand!!
Also to everybody who came by our stand and to Claire Walker from Baby Maze who invited us to stand at the Show!!
MONDAY 3RD MAY 2010 - 11:40AM START - GILLIONS 5K FUN RUN AT CROSBY, LIVERPOOL
Owen Gigg took part in the Gillions Fun Run and raised £130.00 + Gift Aid for the Ryan Stanford Appeal.
Huge thanks to Owen who has already signed up for another fundraising event - the Sefton Triathlon on 26th June 2010.
TUESDAY 4TH MAY 2010 - SATURDAY 8TH MAY 2010 - LADOS "THE PAJAMA GAME", GRAND THEATRE, LANCASTER
Thank you so much to LADOS (Lancaster Amateur Dramatic and Operatic Society) who authorised us to do a bucket collection in aid of the appeal on every night of their performance of "The Pajama Game" - we raised a total of £449.48!!
For further information on LADOS and the Grand Theatre, please visit their website www.lados.org.uk or www.lancastergrand.co.uk
SUNDAY 9TH MAY 2010 - BEAVERBROOKS BLACKPOOL 10K
Ten people ran and completed the Beaverbrooks Blackpool 10K in aid of the Ryan Stanford Appeal.
They were Helen Capstick, Dave Stanford, Donna Newsham, Guy Collen, Julie Kermath, Zoe Hall, Garry Hamilton, Rob Wilson, Amy Unsworth and Kirsty Lee.
MONDAY 10TH MAY 2010 - GREAT ECCLESTON LADIES NFU - CHARITY NIGHT, OUT RAWCLIFFE VILLAGE HALL
The Ryan Stanford Appeal and the Air Ambulance were both selected as this event's chosen charities.
The event consisted of a coffee evening with a buffet, a raffle, tombola, cake stall, plant stall, fresh produce stall and a gift stall.
We received a cheque for £515.00 for the appeal!!
MONDAY 17TH MAY 2010 - 9AM TO 6PM - DANA HAND CAR WASH, BULK ROAD, LANCASTER, LA1 1DF
Dana Hand Car Wash and its customers raised £150.00 for the appeal by having a charity car wash day.
Big thanks to Amy for setting this event up!
FRIDAY 21ST MAY 2010 - 5PM TO 9PM - BOLTON-LE-SANDS CE PRIMARY SCHOOL "AN EVENING OF FUN"
Thank you once again to Amy for setting this opportunity up for us.
We raised £67.41 on the night for the appeal - thanks to Ryan's big sister Megan and her school friends Kayleigh and Iona for helping on the stand for the night.
For further information on Bolton-le-Sands CE Primary School, please visit www.bolton-le-sands.lancsngfl.ac.uk
FRIDAY 28TH MAY 2010 - WINMARLEIGH CE PRIMARY SCHOOL
A huge thanks to all at Winmarleigh CE Primary School for raising £32.50 for the appeal by holding a non-uniform day and a cake stall.
Special thanks to 5 year old Emily Thornton for writing a letter to her teachers asking if they could raise some money for the appeal.
For further information on Winmarleigh CE Primary School, please visit www.winmarleigh.lancsngfl.ac.uk
THURSDAY 3RD JUNE 2010 - YORKSHIRE BUILDING SOCIETY CHARITABLE FOUNDATION
Many thanks to Yorkshire Building Society Charitable Foundation who kindly donated £75.00 to our appeal.
For further information on Yorkshire Building Society, please visit www.ybs.co.uk
SUNDAY 6TH JUNE 2010 - UNITED PARISH OF SCORTON, BARNACRE AND CALDER VALE CHRISTMAS APPEAL
A huge thanks to Rev David Brown for selecting us as one of six charities to receive parish donations from their christmas appeal. Thank you also to everybody who supported the christmas appeal.
The United Parish raised £400.00 for our appeal.
For further information, please visit St Peters, Scorton on www.stpetersscorton.org.uk, All Saints, Barnacre on www.allsaintsbarnacre.org.uk or St John the Evangelist, Calder Vale on www.stjohnscaldervale.org.uk
THURSDAY 10TH JUNE 2010 - SEQUENCE STEPPERS CHARITY DANCE GROUP
A huge thanks to Sequence Steppers for donating £500.00 to our appeal.
Sequence Steppers are a group of friends who organise dances at Barton Village Hall, Nr Preston on a fortnightly basis, always on a Thursday. They normally have live music, sell home-made refreshments and run a raffle. All profit is donated to local charities and worthy causes.
Should you wish to find out more information about Sequence Steppers, please contact myself (Anne) on enquiries@ryanstanfordappeal.org.uk and I shall get you in contact with the group.
SUNDAY 4TH JULY 2010 - MANCHESTER TO BLACKPOOL CYCLE RIDE
Thanks to Billy Matthews from Kirkham for raising £203.50 + gift aid by taking part in the Manchester to Blackpool cycle ride - approximately 60 miles.
SATURDAY 17TH JULY 2010 - CHILDREN'S NEARLY NEW SALE, LANCASTER AND MORECAMBE COLLEGE 1-3PM
Big thank you to our sponsors - Burton and Fisher Financial Services of Bare
SATURDAY 24TH JULY 2010 - BLACK KNIGHTS PARACHUTE CENTRE, COCKERHAM
Thanks to Mark Woods, of C & M Auto Services, Lancaster who did a Static Line Solo Parachute Jump in aid of the appeal.
19TH SEPTEMBER 2010 - BUPA GREAT NORTH RUN 2010, NEWCASTLE
Congratulations to Angela Knight and Katie Allan for completing the BUPA Great North Run 2010, the world's biggest half marathon!!
FRIDAY 24TH SEPTEMBER 2010 - 1ST CHARITY GOLF COMPETITION AT HEYSHAM GOLF CLUB, NR MORECAMBE 1PM - 4PM
Thank you to everybody who attended our charity golf competition at Heysham Golf Club on the 24th Sept 2010.
In total, the golfing event raised £1,020.48 including gift aid donations. An extra £69.52 was made selling the "Alpers Syndrome" silicone bands.
Massive thanks to Heysham Golf Club and to Mark Gregson, Dave Stanford and Did Wilkins for organising the competition.
Event sponsored by Heysham Golf Club - for further information on Heysham Golf Club, please visit their website at www.heyshamgolfclub.co.uk
SUNDAY 26TH SEPTEMBER 2010 - FLEETWOOD TRIATHLON
Congratulations to Paul Burrows and Adrian Pailing for taking part in the Fleetwood Triathlon and raising a huge £490 in aid of the appeal!!
For further information on the triathlon, please visit www.fleetwoodtri.org.uk
SATURDAY 9TH OCTOBER 2010 - CHARITY CASINO NIGHT AT THE DOLPHIN PUB, UXBRIDGE
Ian and Sam Seeley (and friends and family) organised this fundraising event in memory of their daughter, Neve Seeley, who sadly passed away in June to Alpers. They are an absolutely amazing family and have raised thousands of pounds for the appeal.
FRIDAY 15TH OCTOBER 2010 - SPECIAL CHARITY CONCERT AT COCKERHAM PARISH HALL, COCKERHAM
Joe Gardner, Family and Friends raised £700 at this event for the appeal.
SATURDAY 23RD OCTOBER 2010 - CHARITY DISCO & CABARET NIGHT AT THE MORECAMBE CRICKET CLUB
Trisha Wilkinson, family, friends and colleagues from Lune Park Children's Centre raised £1,475.00 for the appeal.
SATURDAY 20TH NOVEMBER 2010 - "MAGIC OF THE MUSICALS" CHARITY CONCERT AT MORECAMBE PARISH CHURCH
Paul Atkinson and friends raised £837.08 for the appeal at this fantastic event.
WEDNESDAY 26TH JANUARY 2011 - FURNESS BUILDING SOCIETY CHARITY CHALLENGE FINAL AT THE GRAND THEATRE, ST LEONARDSGATE, LANCASTER
Amy-Jo won the Furness Building Society Charity Challenge raising an amazing £1,000 cash prize for the Ryan Stanford Appeal.
What an amazing voice she has (look her up on YouTube!) and what an incredible 13 year old!!
Thank you Amy-Jo so much - your support has been greatly appreciated xx
NB. Since the show, I have also received a letter from Furness Building Society informing me that they had invited Amy-Jo to sing at their AGM and she had asked them to donate £100 to the Ryan Stanford Appeal on her behalf xx
6TH-14TH JUNE 2011 - TEAM OF 5 RAISING FUNDS BIKING OVER TO SPAIN AND BACK!
Caz Cartmell, a good friend of mine who I was studying my QS degree with prior to Ryan falling poorly, has recently informed me that her lovely husband, Ade and 4 others are raising money for the appeal by biking from Blackpool, UK to Spain and back - a mere 2000 mile round trip!!
Please support them on their mission by way of donation via their Justgiving page http://www.justgiving.com/caz-cartmell
17TH JULY 2011 - RYAN STANFORD APPEAL FAMILY FUN DAY ORGANISED BY CAROLINE WARNE, FAMILY AND FRIENDS AT KIRKHAM & WESHAM CRICKET CLUB, WOODLANDS AVENUE, KIRKHAM, PR4 2JQ
A good friend of ours, Caroline Warne is, along with her friends and family, organised a Charity Family Fun Day for the appeal at Kirkham Cricket Club, Nr Preston.The weather certainly was not our side hence many outdoor activities had to be cancelled however both myself and Dave were touched to see how many people had turned up to support the appeal. They raised a grand total of £311.75 for the appeal. Without people like these giving their time and effort to raise funds for the appeal, we would not be where we are today.... Thank you so much to everybody - both organisers and those who supported the event in some way...
P.S. Caroline, family and friends also rallied round to get winners prizes and auction prizes for the golf competition - this has so far generated a further £50.00 for the appeal xx
22ND JULY 2011 - RYAN STANFORD APPEAL CHARITY GOLF COMPETITION 2011 AT HEYSHAM GOLF CLUB
18TH SEPTEMBER 2011 - GREAT NORTH RUN
Dave Stanford, Jaclyn Redman, Chris Gillow and Rob Taylor completed the Great North Run collectively raising over £2,500 for the appeal. The Great North Run is a half marathon in Newcastle - this was a mammoth effort made by all four of them - we are extremely grateful for your support and well done.
STARS COME TOGETHER FOR CHARITY CD AT THE BAY
FRIDAY 16TH SEPTEMBER 2011
CD is on sale now - costs £5 - every penny will go to the Ryan Stanford Appeal.
Order via www.thebay.co.uk - free packaging and postage
- David Wood, Principal and Chief Executive of Lancaster and Morecambe College

